We set off from Scotland yesterday morning and our plan was to stop off at family in Sheffield in order to break up the journey, instead of the straight 450+ miles into London. It was a good distraction for us all, and it helped take our minds off the reason for our journey.
We set off from Sheffield at 6am this morning, much to Robbie and Chloes dismay, they have never been early risers and I think they were probably in shock for the first hour or so...
The appointment letter from Kings College Hospital clearly states you must call at 9.30am on the day, to ensure there is a bed available, and my stomach was churning from about 8am with the fear they would say there were no beds available, and the planned op would be delayed... It transpires my concern wasn't necesarry and his bed was indeed ready and waiting.
For any of you who are going to experience this op, I would say it is difficult immediately as once you have decided to go ahead with the procedure you will find yourself worrying about things that could prevent the procedure from going ahead, will your child be ill, or have a temperature, or runny nose at the time the op is scheduled for?, will the hospital not have beds available? etc etc etc... Alas it transpires we have experienced none of the above, and indeed the indications are Robbie's DBS will go ahead tomorrow morning.
Are we nervous? You better believe it!, but when you see him struggling more and more each week we need to do this. My hopes at this moment in time are first and foremost we get Robbie through the DBS without any issue and with minimal pain to him... Hopefully a quick healing time, at least then the really scary part of this trauma is over... As for the success and fine tuning of the stimulation, it really is a wait and see, time will tell situation... And I got all the time in the world for this brave little guy.
That said Mum is at the hospital with Robbie tonight, to be honest me and Chloe made a swift exit when we discovered he was getting bloods taken and a cannula fitted!!!
At the end of the day, it is very clear when it comes to the crunch there is no one quite like Mum to calm you down and you really need a hug... Thanks Jane for being a wonderful Mum to all our kids, they know they can always turn to you in a crisis and you will be there x
Less than 12hrs to go, and I cannot help but keep looking at the clock, guess it's gonna be a long 24 hours ahead...
Hi there . We're with you all the way and send warmth , strength and thoughts at this time. Keep safe and strong wee Robbie , you are ine amazing boy as are your family !
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