Hi all, been a few weeks since the last blog, however as we run up to Robbie's 6 month assessment I thought it best to provide all with an update.
It is with a bit of a heavy heart I write this blog today, as over the last 10 days or so, Robbie has complained of an ache behind his right knee, initially we just surmised he had maybe been overdoing it a bit, however vigilant as ever have kept a very close watch on this, as he was complaining most mornings of the pain, we decided about a week ago to use the pain scale chart for kids to assess if this was getting worse or staying quite level.
Unfortunately Robbie has slowly during the course of the week moved from a 1 to a 5 so it would appear as though the pain does seem to be getting gradually worse and this I believe would tend to relate to his dystonia (indeed Robbie even stated the pain was "coming back again to how it used to be")
I have e-mailed the team at the Evelina to advise them I have reintroduced his Gabapentin medication, you may recall this is a medicine designed to combat neuropathic pain caused by nerve damage. Fingers firmly crossed after a few days this medicine will start to reduce Robbie's pain. (It certainly worked well for him prior to DBS so one can only imagine it will help to alleviate this current pain)
This said Robbie is still very upbeat and he seems to be able to not let this affect him, he is back down for his 6 month review in two weeks and we look forward to seeing the team again.
Robbie has now taken school dinners for the full week for the last fortnight and he is really happy to do this, he is tired in the evenings by the time he gets home, however still manages an hour or so out n his bike (He has travelled absolutely miles around our back garden)
Although the blog starts off on a bit of a down note, we are in no way disheartened, he is still able to do much more than he was able to do prior to his DBS, his school work is coming on leaps and bounds, his confidence continues to grow, his fine motor skills are really good, and he really is a happy little chappy just now... (he is even off to his friends house for tea on Monday on his own - something that certainly would have never happened a few months ago)
One other area for discussion with the team when I go down is his speech, this has never previously been affected by his dystonia, however we have noticed as and when Robbie gets tired (usually early evening) he has a tendency to roll his tongue, and sometimes this affects his speech (It appears as though this is an uncontrollable action) It may well be the case the dystonia is now affecting this area, however only happens when he is over tired, and not a daily occurrence... again we will continue to monitor this situation.
An update will be coming in the next blog on how the 6 month review went, what it consisted of, and of course any updates on the wee mans progress...
Hi Dougie - Julian from Perth here: just wanted to say Marsela and I are thinking of you all and very much hope the review is helpful. Lovely to see how Robbie is benefiting from the DBS and we also hope that the positives continue. Sorry for not being in touch recently, work etc getting in the way a bit but we are following the blog and look forward to hopefully hearing good things from the review. Take care and all our best wishes
ReplyDeleteALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM DYSTONIA.
ReplyDeleteIs my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from dystonia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her dystonia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from dystonia. and now she very mush okay without any side effects whatsoever, If you have dystonia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.
ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
ReplyDeleteMy daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort . She usually tells me she haves jerky head movements . This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia , do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.
I am Karen from Canada, I once suffered from cervical dystonia,for more than 30 years , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly had jerky head movements and muscles contract ,this ailment was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Jessica on how her daughter was been cured from cervical dystonia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again for more information you can email him on drwilliams098675@gmail.com for help .
ReplyDeleteThanks to Dr Williams I am so mush happy today, I have been suffering from cervical dystonia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to become dystonia free , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after I took his medication as instructed, i am now completely free from dystonia within one month of usage, i am so much happy, thanks to Dr Williams for helping me get my life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have dystonia you can always go through his website on drwilliams098675@gmail.com for more information ..
ReplyDeleteI am Shelley from Los Angeles,California, I want to testify on how i got cured from cervical dystonia, I have suffered from cervical dystonia since the year 2011 with so mush pain,that i have to spend so mush money getting pain relief in the hospital, and I have visited several doctor ,but all to no avail, my world was gradually coming to an end because of the constant muscle contractions and pain , until i saw a post in a health forum about a herbal Dr Williams who use herbal portion in curing people from different kind of diseases including dystonia, at first i doubted if it we be able to cure me, but i decided to give it a try, when i contacted this herbal doctor via his email, he prepared a herbal portion and sent it to me via courier service, when i received this herbal medicine, he gave me step by step instructions on how to apply it, when i applied it as instructed, i was completely free from dystonia just for 1 months of usage,i we recommend this to all my friend family in the world today who still suffering from dystonia you can contact him through his email on drwilliams098675@gmail.com for help.
ReplyDeleteDear FRIENDS,
ReplyDeletenow i have a beautiful smiling face and so are which you all, after reading my testimony. My name is kate, I am 31 years old,
And i live with my husband in Belgium, but I am from UK. I was diagnosed in 2012 with cervical dystonia. Doctors told me this condition was forever. I know how you feel and what you are going through, I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having cervical dystonia was in the summer of 2016. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to get in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.
ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
ReplyDeleteMy daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort . She usually tells me she haves jerky head movements . This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia , do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.
As a sign of gratitude for how my son was saved from dystonia , i decided to reach out to those still suffering from this.
ReplyDeleteMy son suffered dystonia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from dystonia and so many other with similar body problem, and they left the contact of this doctor who had the herbal cure to dystonia . I never imagined dystonia has a cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months he was fully okay even up till this moment he is so full of life. dystonia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony .