He did complain of pain, when the drugs were wearing down or losing their effect, even though he was on a slow release system of the drug he would often wake and complain of pain. This seems to come across as an itch when you watch Robbie, it is like he was trying to scratch his head... (This may also be down to the fact he has a large bandage covering his entire top half of his head, and in the hospital with it being so warm I dare say he would have been sweating beneath this hence you can certainly see there would be some discomfort)
It was very much a standard post op day, and as you would expect there really was nothing much happening except for the nurses coming in every hour or so to take observations of temperature, blood pressure and the likes.
Even after this surgery the i-pad was being used for short spells, Robbie playing his beloved fishing game.. We were advised Robbie was to be transferred to the Evelina the day after surgery, however due to a lack of bedspace this has been put on hold till tomorrow...
Overall I think the whole family Dad, Mum and Chloe are really feeling the strain, and tiredness is kicking in to us all.... but hey on the positive side our little lad is on the mend from the op and this makes it all worthwhile.
Certainly it is difficult to tell at this moment in time to see if the surgery has made any changes to Robbie's dystonia thus far... You do find yourself looking at his posture etc, and asking yourself is he doing anything different etc etc etc, however I have decided for the interim to solely concentrate on getting him to recover from the op, and get himself fit again before I analyse this any further. The main thing is nothing has changed, he can move all his limbs, memory is good and he can speak etc as normal... these are some of the things that really worried me post op, but all is well so far
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