Robbie took his last dose of Sinemet on Thursday afternoon, making a big song and dance over the fact his tablets are reducing I exclaimed “No more sinemet for you Robbie", to which I got the response “I will miss you Sinemet” This was the first ever medication he was prescribed way back in the early outset of the Dystonia and he has had to take three of these throughout the day, every day for the last 2 years. Only Trihexyphenydil and Gabapentin are taken now, along with a course of 3 doses of Piriton daily to try and relieve the “itchy head” he gets most days (It actually seems to be honest he is aware of the scar tissue on his head and he just keeps scratching it, hopefully a habit that will subside as he gets used to it being there)
Robbie seems to be coming to terms with using a knife to cut food; he now wants everything uncut so he can use his new found skill. We have also had a major focus on Robbie’s eating his week as briefly mentioned last week he is a really fussy eater and would only ever eat a few choice meals, as his recovery continues we have an agenda to start pushing him a bit to discover and at least try new foods, it has to be said at this early stage this has been quite successful, and so far newly added foods to his diet now include, mash potatoes, chicken, gravy, pancakes, grapes and sweetcorn. Real progress is apparent and Robbie seems to enjoy trying (at last) new foods.
We also got Robbie a new bike this week in an effort to get him trying this new skill, we have added stabilisers, however have also experienced a few falls during the first few attempts on this, and he is finding the concept of getting the pedals to move 360 degrees at this time difficult (I have added a video to show this) however he is happy enough to persevere on with this challenge, I am sure he will get there eventually.
Swimming lesson this week was an interesting event, Robbie seems to be able to swim on his back without too many issues, although co-ordinating all 4 limbs in unison is still a bit challenging for him, it is however very early days and I think given time to practice this will improve, swimming on his front is proving a bit more difficult for him as he has a stronger side which means he keeps pulling in one direction instead of a straight line, again I am sure it is something that will improve with practice... he has cracked floating on his back though (something I cannot do). It is only his third week so maybe I am the one not showing enough patience, regardless, we will persevere with this challenge and we will get there.
We are still continuing down the road of pushing Robbie to be more independent in many ways, he no longer gets lifted into the car and climbs in by himself (that said I am always right behind him in case of any falls etc) he manages most tasks unaided just now with the minimum of assistance, however we are always close by in case of any difficulties.
One slight difference we have noticed is when Robbie becomes angry or upset he seems to be really intense in his mood, and it is like a red mist descends and he loses the plot completely, during these rare episodes he becomes very difficult to calm down... this could just be a tantrum type of thing with his age, however a situation we will be monitoring very closely.
Other than the above it has been another really good week, and Robbie goes from strength to strength with his improvement in all areas...
Dear FRIENDS,
ReplyDeletenow i have a beautiful smiling face and so are which you all, after reading my testimony. My name is kate, I am 31 years old,
And i live with my husband in Belgium, but I am from UK. I was diagnosed in 2012 with cervical dystonia. Doctors told me this condition was forever. I know how you feel and what you are going through, I just want to tell you that I am cured now,with the help of doctor williams herbal medication, the last time I can remember having cervical dystonia was in the summer of 2016. It was a long and difficult process but I am so thankful to dr williams I don't have it anymore. Please know you can be cured too. Accept what happened and is happening to you, forgive, let the past go, love yourself and others unconditionally and be thankful. Everything happens for a reason. If you want to get in contact with dr williams and share your own testimony and thoughts feel free to e-mail him on; drwilliams098675@gmail.com for advice and for his product.
ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
ReplyDeleteMy daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort . She usually tells me she haves jerky head movements . This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia , do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.