School were updated on the previous couple of days and a meeting has been requested with the school as part of his integrated support plan... we figured it best to have a sit down with the school and go over the literature from the Evelina and give them a chance to look at this and establish if the school had any questions they needed answered in relation to Robbie's procedure.
The thinking is along the lines of what post op assistance Robbie may need when he is back at school after the summer holidays... My thinking is this will probably be a wait and establish the success of the op first, but it is best to keep these people in the loop.
Robbie was very tired when he got in from the school, and was feeling sore (back, arms and legs) he basically came in and had a nice warm bath, and pretty much lay on the couch till about 6.30pm when he announced he wanted to go to bed !!!
Robbie fell asleep very quickly and we can only guess the travel over the last few days had worn him out.
For those who may be unaware when your child has Dystonia the school does have a support plan (this applies to any condition a child may suffer from being it physical or mental) and I would wholeheartedly recommend any parent pushes for this if required. Basically an integrated support plan brings together both educational and medical professionals involved in any treatment or needs your child may have and ensures these are catered for whilst the child is at school.
Chloe went back to school part time a week after returning home from The Evelina. The wounds at this stage were still a bit fragile but other than that, she had recovered very quickly and was very well. I think she would have gone back full time if I had let her!
ReplyDeleteI think it is important to remember that although this is very difficult, skilled, and intricate surgery, it is not major surgery, and the wounds are quite small and heal very quickly. Chloe slept first day post op, but after that, recovered very quickly and we were walking around the London parks a week later!
I think the worst bit for Chloe was having the clips removed from the wounds before she could go home. This she found painful. I believe they don't use them any more, although I could be wrong.